Parents recall night son was born with rare craniofacial disorder: 20/20 Part 1

čas přidán 18. 11. 2017
After hours of labor, Magda Newman and her husband Russel's son Nathaniel was born with Treacher Collins syndrome.

Komentáře

  • I’m confused why this wasn’t diagnosed on an ultrasound?

  • watch the second part.... the parents literally said we wanted a normal looking kid so we tried for another baby and when jacob came he was like so perfect like a porcelain doll. his face was beautiful. The mum contributed to this by saying i understood motherhood is so easy and beautiful when my second baby came. the mum said she couldn't look at his face for a year after birth. In the same video, Nathaniel said that kids, even high school kids bully him by saying he is non human, a monster. Then what is the difference between his own parents and those high school bullies. I understand you didn't get what you want but do you have to scream that on top of your lungs on national TV for all to hear, for one day your own son to hear these words from his own parents mouth.

  • read the book and you'll see.

  • Nathaniel is beautiful. He was created by God's Hands!! Sperm and egg and genetics are trivial without God saying "Here, I sculpted this beautiful child for you and he is perfection in my hands and my eyes. I give him to you for you to love."

  • How was this not caught through ultrasound?

  • The father has no chin/jaw, I suspect the father is carrying some type of defect.

    • 😂

    • The parents were both tested and they do not have it. It was random

  • They seem disgusted by there own child

  • Am I the only one who has read the book

  • Oh please don't act like you'd have reacted any differently if that was your child!! This is shock and trauma for the parents to see their child and it looks like that and EVERY single person in the world who says they'd act any differently are lying their asses off! I can't even imagine giving birth and then seeing the child looking like that! I'd probably cry for weeks!! and not just because he looked like that, because of his future and all the pain that's gonna come with it! So please get off your high horse and shut up!

  • I bet you anything the parents would have terminated that pregnancy had they known what was coming. Treacher Collins is not detectable prenatally unless theres a family history! It's a nightmare. I understand the resentment they feel.

  • Ok I understand that your BOY was born with a disability but he is human and he needed love from his parents right from the start of life. Not hold your baby for 30 days after birth is just horrible. You judge a book by the cover not what's in the heart that what wrong with this story not the boy it's the parents

  • Everyone: stop being rude to the dad how would you feel if your child was deformed? Me: *looking for the actual comments saying that*

  • Nathanel have 53 surgeries average returns soda straw get rid of trait brand new face it’s Nathanel real life wonder collected nathanel’s book he taped computer and of sentencing hearing loss from treacher Collins syndrome he was a teenager treacher Collins ware syndrome syndrome he gets medical care congratulations we having baby boy it’s Nathaniel amazing

  • “Juliana Wetmore is known as “the girl without a face.” One of the worse documented case of a genetic disorder called Treacher Collins Syndrome and it causes, Juliana was born with severe deformations of face due to missing bones.” Juliana had Treacher Collins Syndrome but her case was the worst doctors had seen. Her parents loved her. She is 13 now, very intelligent and very artistic. To abort a child because of facial deformities, for her looks, is unbelievable to me. When ultra sounds get so sophisticated you can see exactly what your baby looks like that should be reassuring to those here wanting a planned baby to be aborted because of her looks. Just think, they will be able to abort their baby if it’s ugly and say I didn’t want her bullied. Search CS-tv for Juliana. Her bravery is astounding. Documentary on Juliana Wetmore: cs-tv.org/tv/video-tjpTVYVM5wQ.html

  • Who else came from the movie Wonder?

  • Emma

  • Do not say shut up

  • The "Beautiful" part of the story gives me chill. Music is powerful!

  • He looks like his dad.

  • You r beautiful. You r normal

  • Shame on the Doctors and nursing staff's bed side manners. They were trained to control their reactions to shocking situations. They're in the medical field, they're going to encounter horrific sights. You can't scream or gasp when you see a baby born & leave the mom wondering "What the heck is wrong...what...is he alive, is he ok...what?" You're all fired!!!

  • Is it bad that I cry every time I see this

  • The parents aren’t jerks. I get why they are upset. They don’t want their kid to have problems due to possibly death or bullying or any problems. No parent wants their kid to have issues.

  • Been thru something similar although we had some idea from a 6 month scan. I'd rather hear the truth from parents so we know these feelings of shock are not an indication of a lack of love but of fear, shock and the knowledge of what is to come. We loved our nephew for everything he was. He only lasted 3 days but was held and cherished by all.

  • It’s true if you’re part of the low risk pregnancy they don’t really do much test or ultrasounds I only got two one when I was 14 weeks and another on late on my pregnancy and nothing after I really wanted one before I gave birth but it didn’t happened because they said it wasn’t necessary since it looks like everything it’s going good and you’re healthy.

  • That’s when you don’t have prenatal care...like ultrasound. That’s where the parents would have seen the deformities.

  • The fathers face when he says “That’s gonna be my kid?” So rude😡😡😡😡😡

    • He's not gonna lie on TV. It's okay to be honest.

  • As a nurse whose specialty is developmental disorders as well as severe mental illness, I have worked with Treacher Collins children. I would have immediately told those parents that same thing. "Your son will live a long, healthy, wonderful life" energized the room with my own joy to begin lifting their shock. They are just having natural shock of having to adjust to a new reality. I think OBGYN staff need to have at least 1 staff onsite who is experienced and trained to work with children with pervasive developmental disorders and craniofacial issues as well as other physiological birth congenital issues. Those parents should have not had to deal with staff's shock. that exacerbated their own shock and adjustment. It breaks my heart. If I had been there that would never have happened.

  • I would have terminated the pregnancy

    • You can't catch this one prentally

    • Please don't procreate if you can't feel love. Thanks

  • Growing up my best friend had TCS

  • I have treacher Collins syndrome and I know my mum and dad were frightened when I was born at 27 weeks. I completely understand the parents thoughts and feelings even now. I have have 14 surgeries and I don’t look like I did previously. I don’t hate the parents I love the fact they embraced Nathaniel and kept him. They are loving parents

  • No ..if they would have sat in front of the camera and said how beautiful their baby was.. even with all the deformaties and went on to say we are not afraid of this...you all would be saying what liars...they are just a binch of fakers...even with the Doctors and nurses were in shock..they must had never seen that either but the parents are not suppose to be in shock? They didn't give him away...disown him..they love and are found a fantastic job. They are speaking out to help some other parents who just might be going thru this or just watching this and so, once again you can't win for loosing..

  • When I was first born ( seconds old ) I was PURPLE. FREAKING PURPLE. It was because of my skin tone

  • I thought the baby didn’t look like a human for the first impression.

  • The dad is not a jerk. He just wanted what all parents want; the simplest path in life for their children. The one not marred with cruelty and physical limitations. Knowing that you can’t do what others can do so easily can be hard for adults; let alone children who are equipped with imaginations and hopes beyond their wildest dreams.

  • How did they not see it in an ultrasound? My mom is 7 months and you can see almost every detail of the babies face.

  • Give the dad a break

    • He called his son a thing

  • Awwww these parents make me sick he is a handsome young boy god makes everything different even humans and this boy has a bright future he is alive and he has a gift to share with the world. I will have him no problem.

  • Why can't we see him?

  • Lol you all are just mad because he’s honest... everyone would of thought it but not a lot would admit it like him

  • Where's part 2 ?

  • bless this family❣️ where do I find part 2? thank you

  • I gave birth to my son Joshua in 2015. I was scared when he was born. He could only breathe when he cried and they had to take him immediately. He has Aperts syndrome which is one in 65,000. It occures spontaneously so I did nothing to cause it. I was personally shocked at his hands and feet which were fused at first, but as time went on other babies looked weird to me. There is a lot going on at these kinds of births. I myself was in labour for thirty eight hours. Don't be too harsh on parents that don't know what to think at first.

  • Did the ultrasound not show anything unusual? Before she had the baby? I don’t get it.

  • My best friend has Treacher Collins syndrome. It hasn't stopped her from being a best student in the school ending school with best scores from exams and now she's studying medicine. I'm very lucky to have such friend.

  • We held the "thing" my son

  • Ur appearance is only the shell of ur soul. Everything u are is mental and spiritual.

    • True but life seems all about looks sometimes

  • Please let your wife to talk also, she gave the birth and is also a parent. So stop occupying every second in the video.

  • What happens when Nathaniel sees this video? The way they are talking at times seems terrible. Being shocked is understandable...but this video was after the initial shock. Clean up your words & phrases. You can express the shock/surprise without sounding so heartless. And am I hearing them refer to him as "it" at certain points? I hope I am hearing it incorrectly.

  • As a first time mom, if I did get all the ultrasounds and standard testings done and ended up giving birth to a baby with serious deformity, I'd be in shock, too. Who wouldn't?

  • I think his reaction is pretty normal. They didn't know that the baby had any medical problems, it was their first child, he might not have been around children much. They aspected a standard looking baby, you would be in shock because they didn't know what was wrong and if he would be able to survive. If they knew this during the pregnancy they could have prepared themselves and get used to the idea, now it all came at once during a stressfull time. It took them a minute to let everything sink in and then they decide that their baby was beautiful no matter what. I think that's great.

  • What is wrong with you people? They are recounting their first feelings, real, raw. I may have reacted the same way at first, so stop being hypocritical.

  • ok but why they keep referring to the child as "it" 😐

  • They talk about their son like he is a freak it's really sad. Just the choice of words was like they were looking at the pictures online rather than talking about their own child. I hope he never sees this interview, that his parents were practically disgusted by him when he was born.

  • I think the dad is just open and honest.

  • The dude sounds really stupid

  • Yeah That's nice thought

  • I thought they only lived till like 13

    • I think that may be progeria

  • Dang, whites always have the weirdest genetic hereditary disorders.

    • I guess you haven't seen India..? Also, Other races do abortions immediately, baby killers. Only whites are compassionate

  • Where the fuck is part 2?

  • The doctors were idiots for not testing. This level of craniofacial abnormalities can even be detected in ultrasound, they can see the shape of the face and head. They could have been better prepared for this.

  • Is it me (sorry to be off point) or is Aguilera a not so good singer?

  • I was born with a mild case of treachers Collins

  • Oh my... You can see the love this dear man has for his son... He will be a wonderful support and encourager...

  • tbh i think all newborns look like aliens soooo, y’all need to chill

  • cs-tv.org/tv/video-feGliiEsomo.html. Part 2

  • holy shit that dad is a fucking asshole

  • I cant believe he said that if I had a kid like that I be happy and when he's born I be surprised and when I Hildebrand him I be crying and happy so ya I think the man rude cause they also in the full video they called him a thing

  • The dad is just being honest.

  • the news report makes me wanna go to this department and yell the shit outta my head

  • this is the most disrespectful and disgusting shit i have ever seen

  • The dad is ugly as shit. He should keep his mouth shut and be thankful

  • Omg, God Bless you and your family!!!!!!!!💕💕💕💕💕💕💕😂😂😂😂💕💕💕💕💕💕💕

    • why did you put the crying laughing emoji..

  • "We held the thing" like really?

  • Imagine what would happend when Nathaniel sees this video... :(

  • Shock shock

  • Where is part 2?

  • I don't wanna be mean, or rude... But I think that Augie! Wow R.J Palicio, nice going.

  • I really appreciate the parents honesty. I’ve dealt a lot with mental health and it’s hard to face the backlash of being honest about the thoughts that you have in those moments. They seem to have raised him well and as a mom I can understand the shock and loss felt. I had difficulties with my first and it left me feeling robbed of a good experience and it’s tough for sure. I can’t wait to have a better time with my next but my experience doesn’t make me feel any less love for my girl.

  • Shows zero pictures of their child .Crying because he’s not normal looking .A Christina Aguilera song is what help them fall in love with their son ?Denial much unbelievable.This guy needs to get some therapy because clearly he’s not over the looks, they didn’t share one damn picture of there son😟😶on here. Of course your son is beautiful . Love unconditionally no matter what he looks like. You don’t need to Christina Aguilera song to know that .WHAT A JERK.

    • DD Bears Maybe they want to protect him. Admit it you just wanted to see what's up with him. That's why I watched and was disappointed. But if you or I just have to see there's plenty of pictures of Treacher Collins out there, so exactly why are you blaming them because our nosiness wasn't satisfied? Leave these good people alone.

  • This made me cry. My son was born with Goldenhar syndrome with Craniotomy facial abnormalities, profound gearing loss, bilateral cleft lip and palate, scoliosis, missing kidney, and missing ribs. We were young teenage parents and had him at only 27 weeks. My husband instantly fell in love with his son. Many surgeries followed over the years. We love him to death. He’s a miracle and did everything the doctors said he wouldn’t be able to do. The nurses and doctors tried to get us to put him in an institution but we refused. Many “professionals” told us it would be a better quality of life. I remember one saying look around, you don’t see people like him walking around. That’s the best place for him. I couldn’t do that to him and neither would his dad. Then we had our second child 8 years later. During an ultrasound we learned he would have a cleft lip. Immediately they told us we should get an abortion. They really pressured us but we didn’t give in. If we had gone through so much with our first, cleft lip was a walk in the park for us. Our next child was a girl, 4 years later. Then we were told she would have spina bifita and we should abort as well. We refused and she was born completely healthy. At the age of 2 she began to have seizures. Now she’s on medication to help with that. Out next and last daughter was diagnosed through ultrasound to have down syndrome. Again, the pressure to abort. We didn’t and she’s the smartest child I know and NO she was not born with Down syndrome. It’s sad how wrong the medical community can be. Imagine all those children aborted and in reality there is nothing wrong with them. Today we struggle because we decided I would stay home and not work because of all the appointments the children have. My employers were not understanding that I have disabled children. We struggle financially, and I do lots of things to help with our cost of living by making our own soaps, couponing, being used clothes or swapping them with others. I try my best. Today my oldest is now 21, he’s not ready to leave home and he does have a mentality of a 10 year old and he struggles with his self esteem and self worth. Because even though he’s had all these surgeries, he still looks noticeably different. When he was younger people would stare and say nasty things and hurtful things. I’d get so angry and scold them for doing that. My son said he always noticed people would stare or do a double take. He said it used to get him upset but now he ignores it. He’s sad though because he has not had a girlfriend. (Although, we are Christian and believe in Christian dating.) I tell one day God will send him someone.

    • Beautiful Star Shining bright wow God bless you 😍😍😍🤩🤩🤩🤩🤩🙏🏾🙏🏾🙏🏾🙏🏾🙏🏾🙏🏾🙏🏾🙏🏾🙏🏾🙏🏾🙏🏾🙏🏾🙏🏾

  • Brave and strong parents!!!

  • These parents are very honest letting us have insight into those first hours of seeing their baby.

  • This dad just says what everyone was thinking. You thought you had a normal child I don't know how I'd react.

  • When the host said “he saw an opportunity and seized it”. That makes me think of a job not so much of a romance hahaha

  • He reminds me of mark ruffalo

  • "Left alone on the delivery table while doctors rushed to care for the baby" ...ok slow down there, media. OBs dont care for babies. I am positive the OB and OR staff was continuing the section, removing the placenta, and closing her up. She was not left alone on the delivery table lol

  • so we not gonna talk about how Christina’s performance was trash? ok.

  • Amen and blessings...to that woman from the surgical center! Every baby is a joy, regardless if the baby is born with an unexpected genetic abnormality. I advocate for all children with different abilities, and spent my career as a Special Eduction teacher. Children are as normal as they are taught to be...parents who learn that early will find all the joy in the world!

  • Don’t they see this in the ultra sounds I would defiantly abort a disabled child simply this world is cruel world he won’t survive 😒😒😒

  • I'm very sorry as a parent idk how I'd react just saying . but my son is beautiful rather a limb gone or deformed its a gift from god

  • I just hope that they get their crap together before their son is old enough to be destroyed by their feelings and shallowness.

    • Rosanna Miller it was a their FIRST reaction. They got over it.

  • Sad to say, but as horrible as it is/was for a "father" to respond in such a manner, his response could have been worse.

  • He CALLED IS SON A THING WTF

  • They didn't see this during an ultrasound gtfoh

  • They dont remember the night their son was born they remember the night he was born with a severe craniofacial disorder

    • Daisy Duke And? It was a shock to them. Of course nothing would knock you down right? Nothing except other people's reaction to what really happened as opposed to what you imagine you would feel like. That's the point of sharing the story, to tell YOU what it actually felt like.

  • No offence i couldn't allow my child to live like this... I'm not cruel the doctors and parents are for letting their child be the next 5 dollar freak show....

    • Cass K you’re a freak show, bitch!

    • @Nikki Smith with the before pictures and with how advanced ultrasounds and 3d imaging are im very suprised they didn't see it. And yes with all the genetic test they run while pregnant should of detected it. The doctors were negligent. I pray for this child and my heart aches for him. I pray hes loved and accepted. Im 4 months and they are running test already... And even flooded with emotions i couldn't let a child suffer in that way... 😢

    • You think so you never know what God got here for that baby yes this world is cruel with judgement but it is a life I'm trying to figure out with all this technology we have that they didn't detect this earlier amniocentesis test something before it got this far. But the baby is here teach it to be confident and live a healthy life I truly pray for this child

    • Have you seen the before pictures? What's cruel is the parents to let their child live such a lonely life to be bullied and scaring other kids. That's what's really mean

    • That is cruel what kill the baby upon delivery because the baby isn't pleasing to the eye you bond all 9 months you don't throw life away

  • I saw this when it aired. This couple is awesome!

  • Wow what a horrible interview

  • The dad is not a jerk he could've easily bailed on his wife and kid but he didn't... put yourself in his place the kid didn't look human how the fuck would you feel or react...he's a person he's not perfect give him a chance damn